| Total Comments 63 | Start A New Comment |
| Post Info | Comment |
| Posted By: Linda Posted On: Oct 14, 2004 Views: 1164 | Glad I'm a nurse I had been a nurse for 28 years when I had my ostomy. I had done quite a bit of ostomy teaching while working in home health. Although this was very helpful, now that I have had an ostomy, I am able to do a much better job teaching others. |
| Posted By: Serena Posted On: Oct 14, 2004 Views: 1362 | Ileostomy When I had my surgery I was almost 16 or 17y/o and there was a lady that came in and told me about how to change the pouch then that was it except one day she came in and ask me if they could take a picture of my stoma for the some Med. Book I said I guess but why ? She said that my stomy looked just perfect. But when I went home I had the same problem as some of you others everynight at about the same time I would wake up with a leak and My Mom would get up and help me and I would cry then she would cry then after I went back for my check up we told them about it and it turned out that I had a Loop stomy that was the way my Dr did his I had Dr Turbul. I think that is how you spell it. He was the one that came up with this surgey and went all over the US and more to teach others how to do the surgeys. Serena My E-mail Address: Ladybug50@cablespeed.com |
| Posted By: Kristina Posted On: Oct 14, 2004 Views: 1313 | Ostomy Management I am a nurse and often cared for and taught OTHER ostomy patients. When I had mine in January-March, I had a basic understanding and skill at what to do. There was an ET nurse who saw me one day, gave me a bunch of samples and literature, observed me change my bag and that was it. I did have VNA when I got home who also observed me. I had a handful of "blow outs" when I had my ostomy, almost always related to gas build up during the night, or a wafer that I was pushing too hard (like day 6 or so, I always tried to get them to last 7 days) I did get some tips from the UOA message boards, but mostly it was my own gig. |
| Posted By: Deanne Posted On: Oct 14, 2004 Views: 1291 | no stomal therapists When I had my surgery 27 years ago there was no stoma nurses in sight... not one at the hospital.. no-one knew anything..the nurses had never seen an ostomy before.. It was quite difficult but I survived... Having stomaltherapy nurses on hand is a wonderful help these days |
| Posted By: John Posted On: Oct 13, 2004 Views: 1078 | I'm lucky Greetings from the UK. I am one of the lucky ones who has had a colostomy reversed. It took much surgery and many problems but I made it and now try to pass on what I have learned over the last 3+ years. A good nurse is a boon, as are the experiences of others but I found personal experience the most valuable. One of the problems my wife identified is that professionals seldom talk to wives or partners and many ostomists find it hard to explain the attendant physical and emotional difficulties. Talk with your partner and if s/he can be present during your professional consultations, all the better. It may not be nice but knowledge promotes understanding and that, to use a military term, is a high value asset. Best wishes to you all. My E-mail address: johnbebushby@aol.com |
| Posted By: Bobbie Posted On: Oct 13, 2004 Views: 1081 | Learning to manage I had my urostomy done in 1991.I saw a stoma nurse once during my hospital time and once afterwards.Everything has been trial and error. |
| Posted By: Jan White Posted On: Oct 13, 2004 Views: 1111 | My New Ileostomy Hi, I have only had my ileostomy for 6 weeks. I knew well before that I was having this and it was an elective surgery on my part, as I had got very sick of living with a colon that I could not rely on. I have spent much time on the internet reading about ileostomies and the products available. I have only seen the Stomal Therapist at the Hospital twice as it is approx. 70 mile round trip. I did not see her at all until 3 wks after surgery. The most help that I have had, has been from a very dear friend, who has an ileostomy and she has been wonderful. I hope that I can be as helpful myself to someone else, when the need arises. Best Wishes to you all from another ostomate. Live life to the fullest. All helpful hints to a new ostomate would be gratefully accepted. My biggest question is can any of you remember when the tenderness goes away from your stoma ? Thanks heaps. My E-mail: jwhite@xtra.co.nz |
| Posted By: Randy Posted On: Oct 13, 2004 Views: 1065 | ET Nurse's Hi, I had my Ileostomy surgery done 6/89 after discussing it at length with my ostomy nurse. She was wonderful and we became very good friends. But she steered me to reading up on ostomy care, the local ostomy chapter and an ostomy visitor. At the time I was unaware of any computer options, but I talked to anyone I could, and since then I have used the online sites available now. The best advice I can give is not to be afraid to ask questions of your doctor, surgeon, or nurse, before or after your surgery. Remember the only stupid questions are the ones that are not asked! I wish you all well. May God bless you. |
| Posted By: stan Posted On: Oct 13, 2004 Views: 1059 | ostomy management I learned from an ostemy nurse all of one week then learned by trial and error am still learning may god bless and keep you. My E-mail: toper233@webtv.net |
| Posted By: Lucille Gorenberg Posted On: Oct 13, 2004 Views: 1034 | How I manage my Ostomy I am happy to answer your inquiry about how I learned to manage my ostomy. After sleeping for seven days in the hospital after my emergency surgery I was awakened to be told my catheter was removed and I should now go to the bathroom to urinate. This woke me up. Then on the eigth day a nurse came in and took me in the bathroom and showed me how to change and clean my pouch. It was my first awareness that I had a pouch. The next day I went home and supplies greeted me at home. I read the literature that was in the boxes and started to take care of myself. I wasn't able to go to the ET nurse for almost two weeks as it was a 75 mile round trip. During that time I used the internet to learn all that I could about my condition. Later when I developed skin problems I used the internet and the UOA site to get samples of other products and after a couple of bad months I slowly improved my condition by trying different products.. I saw several doctors and the nurse during this time but It was my own experiments and the help of the suppliers nurses on the phone which got me through this period. I had a difficult time getting Kaiser to supply me with Convetec instead of Hollister products but supplies are coming through now. The nurse who came to my home to take care of my wound did a great job and my incision healed very well but she was not an ET nurse. I hope no one has to go through the feeling I had of being cut loose with a life changing condition with no one to turn to. I would like to be of help as best I can to other new ostomates. My E-mail: lunormg@cox.net |
| Posted By: Janie Henderson Posted On: Oct 13, 2004 Views: 1066 | Ileostomy I learned how to care for my ostomy from both my ET nurse and myself. I have had my ileostomy for 4 1/2 years. And I have never been healthier. I have Hirschsprung's Disease-I wasn't diagnosed until I was 14. I started out with a colostomy, which was horrible. Now, I have a permanent ilesostomy and it was the best decision I've made. My E-mail: misseightythree@yahoo.com |
| Posted By: Lynn Harb Posted On: Oct 13, 2004 Views: 1066 | Take down procedure I was dx with crohns in 1997, had a total colectomy with ileostomy in 1999. I am interested in anything other than wearing an external bag. Please respond if you have any info on take down surgery being done at Mayo/Vanderbilt. I am very interested, I am 48, healthy, asymtomatic and want to look normal if possible. Thanks My E-mail: LH395@aol.com |
| Posted By: Ruben Alaniz Posted On: Oct 13, 2004 Views: 1055 | re: Ostomy Management My family is very familiar with ileostomies. Since my family is riddled with FAP. 7 immediate family members and many uncles, aunts, great uncles and aunts. Surprisingly not of which showed me the care for an ostomy. I learned from my ET nurse, which I had for only 3 weeks and from a friend who I was unaware had an ileostomy. Other ways were on the interenet, via the UOA web site. Ruben My E-mail: rjmj7113@earthlink.net |
| Posted By: bea Posted On: Oct 13, 2004 Views: 1016 | learned from et nurse I had my ostomy surgery be four years ago this december 13.It is a part of me now. Best thing i ever did for myself.I had icc disease over 20 years.After many, many surgerys had failed it was my only option left. I had a great et nurse who had learned her skill in the army. She came in my room , and i was still so sick, all i wanted was to go HOME. SHe said, if you can do this tomorrow ( put on my wafer and pouch) you can go home. When she came in next day, i did it perfect first time. She was shocked especially on the dope i was still on.Altho i still had drains in my doctor let me go home . I do have a hernia in my ostomy now ,and my doctor says i will need it fixed soon. But, so far it works great with no problems. I do tell any one- if your on pads or diapers to talk to a doctor about the surgery. You can LIVE with an ostomy. You can not LIVE with diapers or pads. bea My E-mail: withapoetsheart@webtv.net |
| Posted By: Nan Posted On: Oct 13, 2004 Views: 1029 | RE: Ostomy Managment When I first got mine I had the help of an ET Nurse for about 14 months then I moved to another state and joined a ostomy chapter which I gained even more knowledge about ostomies, Unfortunately the chapter is no longer so I have access to a local Nurse that has training with ostomies. Also I can e-mail a ET nurse at Wake Forest and get valuable information. |
| Pages [ 1 2 3 4 5 ] Next Page -> |