OSTOMY MANAGEMENT
HOW DID YOU LEARN TO MANAGE YOUR OSTOMY? [1228 votes total]

I learned primarily via the Internet. (48) 4%
I learned from an ET Nurse. (596) 49%
I learned primarily from an ostomy support group. (42) 3%
I am primarily self-taught. (291) 24%
A friend or loved one taught me. (36) 3%
All or most of the above. (215) 18%


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Posted By: Sandra Brandenburg

Posted On: Jan 9, 2008
Views: 1628
Ostemy Bags.

Hello How is everyone,

I am scheduled on the 17th of January to have a colonoscapy, and at that time my Doctor will be trying to stuff a balloon through my ileum to enlarge it, it has narrowed so much it is almost closed all the way.

In 200 I had all but ten inches of my colon removed due to adheasions and obstructions and scar tissus from previous surgeries.

The Doctor says if the balloon does not work, and he does not seem to have much hope about that, they will have to cut above my ileum, and remove all of that section of my small intestines, plus the remainder of my colon and put me on an ostemy bag.

This of course has me scared, but it would be nice to be pain free, and not have to live on laxatives, that don't really work that well.

My big question is can someone tell me the good, and bad part about having to wear an ostemy bag.

Thank you.

Sandy Brandenburg.


Posted By: Al

Posted On: Jun 25, 2006
Views: 2469
ostomy concern

I recently had an ostomy. I am having a problem with the collection bag leaking. It seems that I have to change it, sometimes 4 times a day, because it leaks around the exterior of the wafer. Has any one had this problem? and if so, is there a way to correct this problem? Any help will be appreciated.



Posted By: Ed Radz

Posted On: Mar 15, 2006
Views: 2584
great site

meetanostomate site is great--its nice to know there are other young adults in thesame situation as myself--just found this sie yesterday and am looking and waiting to chat with others with what life dishes out to you but you just have to learn to accept and live with it


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